28 February 2017

(My) Patient Leadership in Health Care

They say my grandmother used wait on the stoop of the family’s crackerbox house in Southside Chicago and watch as my father walked to school to see if he would get in a fight before he got to the end of the block. The eldest son of a Polish steel mill worker who dropped out of high school, my father was on the wrestling team and cleaned the inside of tanker trains. But he was smart. He liked science and math, went to college on a scholarship, majored in economics, and went on to Cornell Law School.

As a lawyer, he represented the incarcerated’s rights at the state department of corrections, practiced defense in the state supreme court, and became chief legal counsel at one of the state’s 16 public universities. He helped build houses with Habitat for Humanity, served midnight breakfast to college students during exam week, and tutored his daughter who did not inherit his aptitude for science and math. He taught constitutional law and never once found himself on the wrong side of the law save for a speeding ticket or two. Upon his retirement, he was vice chancellor of technology transfer as well as chief legal counsel and one of the university’s most senior and respected staff members. One could say he did all right.

He did all right by mom and me too. Ever a man of his word, if dad said he was working late, he was. He saved for family vacations by eating a sandwich at his desk for lunch everyday. He kept the official score book at my softball games, sitting on the bleachers in his suit and tie, and bought, arranged, and delivered 40 long-stem roses to my mom on her 40th birthday.

My father’s faults I’ve come to understand more as I’ve grown older — not simply what they are (any teenager will tell you what’s wrong with her parents), but why they exist, how they influenced me, and which ones I too carry. He gets angry when he’s scared and feels out of control. He’s somewhat emotionally awkward and expresses affection by trying to foresee all possible problems, caution against them, and devise a plan to prevent them whether he knows what he’s talking about or not.

I don’t have his temper. Being in situations in which my life has been on the line taught me a lot about what’s really worth getting worked up over. I am more spontaneous, often to his ire.

He became more than his humble hand foretold, and he achieved that goal while always taking the ethical path. For that I admire him greatly. For instilling that same sense of ethics in me, I am thankful. And it is his grit, his drive, his call to service, his belief in doing what is good and right that have become my own.

From age 24 to 31, I underwent triple bypass surgery, suffered a stroke, lost my left kidney, had four brain aneurysms repaired, and survived a gastric rupture before I was diagnosed with a rare variant of a rare disease called intimal fibromuscular dysplasia. Its cause is unknown. There is no treatment. Such things might crush some people. I, on the other hand, persisted.

Throughout my period of survival, I learned so much both practical and personal, and I found a calling in patient advocacy. I became an advocate because I could use my pain for the good of others.

As my leadership role grew, I felt I lost my place as a member of my patient community. It seemed that I could not ask those who looked up to me for the support I needed. My professional distance actually isolated me from what had drawn me into advocacy — my fellow patients. 

The kind of leader I want to be has a heart, and honestly I lost touch with mine. Putting my head over my heart had been critical to my survival — a learned coping mechanism. Similarly, my style of leadership came to be, at least outwardly, impenetrable. I strove to be judicious and fair, analytical and unflinching. I cultivated that well, so well that somewhere along the way I began to lead only with my head, and I sequestered away my heart such that it could not betray me.

It was a fellow patient willing to give me a proper shaking by my emotional shoulders who brought me to the realization that in order to be a good leader, I can not lead only from my head, and that the opposite is not to lead only from my heart. I am pursing training so that I may learn to balance both, re-establishing fellowship to rekindle the passion I know lies within me, and kindling the belief that I can become the leader I’ve never had — the kind I would follow into battle, the kind with whom others hope to work, the kind who teaches others how to be good leaders too. 

40 comments:

  1. I think a lot of articles related to are disappearing someday. That's why it's very hard to find, but I'm very fortunate to read your writing. When you come to my site, I have collected articles related to 크레이지슬롯.

    ReplyDelete
  2. Just when I couldn’t love you more. You posted this pic and my jaw dropped to the floor.

    야동
    오피
    스포츠마사지
    안마
    온라인카지노

    ReplyDelete
  3. This comment has been removed by the author.

    ReplyDelete
  4. This comment has been removed by the author.

    ReplyDelete
  5. This comment has been removed by the author.

    ReplyDelete
  6. Nice post! This is a very nice blog that I will definitively come back to more times this year! Thanks for informative post. health insurance spain for students

    ReplyDelete
  7. This comment has been removed by the author.

    ReplyDelete
  8. It was thinking about whether I could utilize this review on my other site, I will connect it back to your site though.Great Thanks. Implant Dentist

    ReplyDelete
  9. Thanks to this article I can learn more. Expand my knowledge and abilities. پرستاری در منزل

    ReplyDelete
  10. I’m absolutely enjoying your blog and look forward to new posts.پرستار در منزل

    ReplyDelete
  11. i like this article , it has a lot of helpful info, thanks for sharing this amazing infoتزریقات در منزل

    ReplyDelete
  12. Thanks to this article I can learn more. Expand my knowledge and abilities
    آزمایش کرونا در منزل

    ReplyDelete
  13. Iam absolutely enjoying your blog and look forward to new posts thanks
    تست کرونا در منزل آسان آزمایش

    ReplyDelete




  14. We provide you the list of the clat coaching in delhi.all institutes that we listed at our portal provide excellent coaching that brings higher selection in clat entrance. The fee structure of each coaching institute are pocket friendly and also available in installments. For more detail about the coaching centre visit our official website www.tutorguideinindia.com

    ReplyDelete
  15. کانون آموزشی و فرهنگی خرد ماندگار

    ReplyDelete
  16. Thanks to this article I can learn more. Expand my knowledge and abilities. مشاوره جنسی

    ReplyDelete
  17. I’m absolutely enjoying your blog and look forward to new posts.مشاوره آنلاین متخصص زنان

    ReplyDelete
  18. i like this article , it has a lot of helpful info, thanks for sharing this amazing info.مشاوره زنان

    ReplyDelete
  19. Great article. Thanks for sharing this blog.
    Have a woderful day.مشاوره پوست و مو

    ReplyDelete
  20. Congrats on an informative post my friend. I am waiting for the continuation of such informative articles.مشاوره پوست

    ReplyDelete
  21. It is the Powerball Association that accompanies the recommended site collection of private sites.نمونه دادخواست طلاق توافقی

    ReplyDelete
  22. Hello, I am one of the most impressed people in your article. I’m very curious about how you write such a good article.اعاده حیثیت

    ReplyDelete
  23. I think the website is great, looks wonderful and very easy to follow.نفقه چیست

    ReplyDelete
  24. it has a lot of helpful info, thanks for sharing this amazing info.سفته ضمانت

    ReplyDelete
  25. I’m very curious about how you write such a good article.شهادت دروغ

    ReplyDelete
  26. I share this article with my friends.وکیل چک

    ReplyDelete
  27. Thanks to this article I can learn more. Thanks اعاده حیثیت

    ReplyDelete
  28. I will try to share this post with my friends.thank you نفقه چیست

    ReplyDelete
  29. I read your articles and I found it very interesting.بلیط هواپیما کیش

    ReplyDelete

"We are what we think. All that we are arises with our thoughts. With our thoughts, we make the world." — Buddha

Dissing Ability

Whether in odds or evens, flights, or cases, stairs divide the cans from the can nots. When I was discharged from the hospital, misdiagn...