the afternoon nap society: I Am More Than My Disease: A Project of Identity for World Rare Disease Day — Gallery

22 February 2012

I Am More Than My Disease: A Project of Identity for World Rare Disease Day — Gallery

In support of World Rare Disease Day, The Afternoon Nap Society presents "I Am More Than My Disease: A Project of Identity." Participants were invited to create their own word cloud images including the name of their disease and words they use to describe themselves. The project aims to call attention to the individuals who live with disease—rare or otherwise—and their lives outside their diagnosis. Too often we forget that patients are people and should be treated as such.

"Think Pink"
Amanda

"I Am More Than My Disease"
RAwarrior

"I Am More Than My Disease"
dazahayes

"I Am More Than My Disease"
Kelly Hayden

"I Am More Than My Disease"
Anonymous

"I Am More Than My Disease"
Hershel Keck

"I Am More Than My Disease"
Reality Gasps

"Chronic Life"
TransformYourChronic Life

"I Am More Than My Disease"
Laura Haywood-Cory

"I Am More Than My Disease"
HurtBlogger

"I Am More Than My Disease"
Caroline

"I Am More Than My Disease—no-bandaids-please-help-us-find-a-cure"
peppermintpatti

Feb. 29, 2012

World Rare Disease Day

1 comment:

DianeFebruary 22, 2012 at 8:31 AM
Love it. Words are often not enough, the art of using words in a visual sense is very attention getting.

Thanks for sharing.

Diane
http://mitochondrialdepletionsyndrome.blogspot.com/
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"We are what we think. All that we are arises with our thoughts. With our thoughts, we make the world." — Buddha

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AfternoonNapper is a consultant, public speaker and advocate fostering the patient voice in medicine through storytelling, social media and design thinking for innovation. Her professional experience includes 17 years in public relations, news reporting, magazine writing, and editing for print and online publications. She has a B.A. in journalism, a M.A. in liberal studies, and a certificate from Columbia University's Narrative Medicine program. Her special interests include narrative medicine, patient engagement, the patient experience, the doctor-patient relationship, the patient-caregiver relationship, chronic illness, clinical trials, health literacy, and social media's ability to connect for peer-to-peer support and medical education.

She is Coordinator of ePatient Programs for the emerging technology and healthcare innovation conference Medicine X at Stanford University and CEO/Chairman and Founder of FMD Chat, a nonprofit medical organization. Additionally she serves on the Rare Disease Advisory Board for Collaborations Pharmaceuticals and Morehead Planetarium's Alumni Council at the University of North Carolina-Chapel Hill. She is involved as an advisor to the Robert Wood Johnson Foundation's planning committee for provider engagement and was part of a small team of healthcare professionals selected from across the country to create a RWJF-sponsored guide to using narrative in medicine.

She has been a keynote speaker at Planetree's International Conference on Patient-Centered Care and Connect AU's Future Health Summit. Her solo presentations and panel contributions have been featured at the American Society of Nephrology's Kidney Week, Doctors 2.0 & You, BC Kidney Days, Medicine X and MedCity News' ENGAGE among others. As an ePatient leader and workshop facilitator, she has partnered with medical school faculty at Stanford and UC Irvine to speak to students about the ePatient experience, led design-thinking sessions with cardiac health providers at Bon Secours Richmond, and explored storytelling to redefine a changing institution with staff at Johns Hopkins' Sibley campus.

Her work has been recognized with a RARE Champion of Hope Nomination for Collaborations in Advocacy among other awards and scholarships.