I Am More Than My Disease: A Project of Identity for World Rare Disease Day — Gallery

-
In support of World Rare Disease Day, The Afternoon Nap Society presents "I Am More Than My Disease: A Project of Identity." Participants were invited to create their own word cloud images including the name of their disease and words they use to describe themselves. The project aims to call attention to the individuals who live with disease—rare or otherwise—and their lives outside their diagnosis.  Too often we forget that patients are people and should be treated as such.

"Think Pink"
Amanda


"I Am More Than My Disease"
RAwarrior


"I Am More Than My Disease"
dazahayes

"I Am More Than My Disease"
Kelly Hayden

"I Am More Than My Disease"
Anonymous

"I Am More Than My Disease"
Hershel Keck


"I Am More Than My Disease"
Reality Gasps



"Chronic Life"
TransformYourChronic Life
"I Am More Than My Disease"
 Laura Haywood-Cory


"I Am More Than My Disease"
HurtBlogger

"I Am More Than My Disease"
Caroline


"I Am More Than My Disease—no-bandaids-please-help-us-find-a-cure"
peppermintpatti





Feb. 29, 2012


Comments

  1. DianeFebruary 22, 2012 at 8:31 AM

    Love it. Words are often not enough, the art of using words in a visual sense is very attention getting.

    Thanks for sharing.

    Diane
    http://mitochondrialdepletionsyndrome.blogspot.com/

    ReplyDelete

Post a Comment

"We are what we think. All that we are arises with our thoughts. With our thoughts, we make the world." — Buddha

Popular posts from this blog

Disease Envy

-
Image
I am so very jealous. I am jealous to the point that I am angry. I am jealous to the point that I scoff in your general direction. I am jealous because you have cancer. Or diabetes. Or rheumatoid arthritis. Or Parkinson's. Or lyme disease. Or just about anything else. I am jealous because you have it and a bazillion other people have it and because you and those bazillion other people have each other. And I feel so very all alone. Being diagnosed with intimal fibromuscular dysplasia first came as a relief—I got a name for what has been wrong with me. Within days of my diagnosis, I saw a post on the Mayo Clinic discussion boards from a young woman suffering gastrointestinal problems who had passed all GI workups with flying colors and who, despite medication, had uncontrolled blood pressure. The symptoms echoed my own. Another woman named Kari responded that the young woman might want to have her vascular system looked at—a comment with which I completely agreed and found unusual
Keep learning and exploring...

(My) Patient Leadership in Health Care

-
They say my grandmother used wait on the stoop of the family’s crackerbox house in Southside Chicago and watch as my father walked to school to see if he would get in a fight before he got to the end of the block. The eldest son of a Polish steel mill worker who dropped out of high school, my father was on the wrestling team and cleaned the inside of tanker trains. But he was smart. He liked science and math, went to college on a scholarship, majored in economics, and went on to Cornell Law School. As a lawyer, he represented the incarcerated’s rights at the state department of corrections, practiced defense in the state supreme court, and became chief legal counsel at one of the state’s 16 public universities. He helped build houses with Habitat for Humanity, served midnight breakfast to college students during exam week, and tutored his daughter who did not inherit his aptitude for science and math. He taught constitutional law and never once found himself on the wrong side of the
Keep learning and exploring...

Access Medicine X: Live Stream Brings Silicon Valley Direct To You

-
Image
Stanford Medicine X is a catalyst for new ideas, designed to explore social media and information technology’s power to advance medical practices, improve health, and empower patients to participate in their own care. But Medicine X also seeks to engage and empower those unable to attend in person to still get involved in the discussion. Through Medicine X’s Global Access program, main stage content from the three-day conference will be made available through a high-quality live stream. Anyone with an Internet connection around the world will be able to view keynote speakers such as Daniel Siegel , MD, clinical professor of psychiatry at University of California-Los Angeles and author of The New York Times bestseller Brainstorm: The Power and Purpose of the Teenage Brain , and panel discussions such as Gonzalo Bacigalupe's focusing on the e-health movement and inequality among marginalized populations. “Medicine X has distinguished itself through a singular commitment to in
Keep learning and exploring...