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Feb. 25-28, 2014 - Rare Disease Legislative Conference & Lobby Day
Rare Disease Legislative Advocates is a collaborative organization designed to support the advocacy of all rare disease groups. Advocates join together in Washington, D.C. to learn about the legislative and appropriations process; inform Congress about rare diseases and the many different needs of the patient community; build lasting relationships with Members of Congress and their staff; ensure that the needs of rare disease patients are considered in future legislation and policy; and empower patient advocates to take an active role in the democratic process.

Feb. 28, 2014 - Rare Disease Day
Rare Disease Day was established in Europe in 2008 by the European rare disease advocacy organization EURORDIS and is celebrated around the world on the last day of February each year. The purpose is to raise awareness of rare diseases as a public health issue. FMD Chat will be marking the day with special social media-based events.

March 10, 2014 - National Napping Day
In 1999, Boston University professor William Anthony, Ph.D., and his wife, Camille Anthony, created National Napping Day in an effort to spotlight the health benefits of sleep. Napping Day provides an opportunity to adjust after changes to daylight savings when losing an hour of sleep due to ‘springing forward’ when Daylight Savings Time goes into effect.

July 23, 2014 - FMD Awareness Day
Fibromuscular dysplasia patients and those who are family members, friends, and healthcare providers to FMD patients are asked to join in a global awareness event to raise the disease's profile and contribute to rare disease research. FMD Awareness Day is solely the creation of FMD Chat.

Sept. 5-7, 2014 - Medicine X at Stanford University
Medicine X is a catalyst for new ideas about the future of medicine and health care. The initiative explores how emerging technologies will advance the practice of medicine, improve health, and empower patients to be active participants in their own care. @AfternoonNapper serves on the ePatient Advisory Panel, which will engineer the patient voice into the conference. Follow @StanfordMedX or the #MedX tag on Twitter.

Sept. 27, 2014 - FMD Chat Together
Fibromuscular dysplasia patients and family members who participate in FMD Chat will come together in Asheville, N.C. for FMD Chat's second annual retreat. Participants will have the opportunity to meet fellow patients and caregivers, learn more about the organization and its efforts, and engage in workshops. Visit fmdchat.org or follow @FMDChat and the #FMDaware hashtag on Twitter.


Bring AfternoonNapper to your healthcare conference via SpeakerLink


Look for AfternoonNapper participating in these recommended tweetchats:

MedX Live!
Held at 8:30 p.m. ET every Tuesday. Regular host @StanfordMedX. Follow #MedX to participate.

MedX Engage & Empower Me Live!
Held at 9 p.m. ET every Thursday. Regular host @StanfordMedX. Follow #MedX to participate.

Healthcare and Social Media Chat
Held at 9 p.m. ET every Sunday. Regular host @danamlewis. Follow #hcsm to participate.

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